Thursday, March 19, 2015

Day 2: A Good Day

Greetings from CHOP! As you know, Vivienne hit a bit of a rough patch last night. The doctors described her as "kind of stable" and ECMO was being discussed. Well, we are happy to report that our little fighter turned things around and ended up having a great day. I'll go into the particulars soon, but first it's important to stress that while a good day is awesome, it's just that: a day. CDH babies are very sensitive, and their situation can change on a dime. That being said, we will happily put today in the "win" column. Now for some specifics:

-Viv started the day with a mysterious fever, but her temperature is now perfect.
-Her oxygen support has been weaned from 100 yesterday to 40 today.
-Her heart rate dropped from 200 beats per minute at the peak of her distress to an average of about 120 beats per minute.
-The setting on the oscillator ventilator has been reduced, meaning she's taking on a bit more of the work.
-Her blood gases have been excellent and consistent.
-Her blood pressure has improved and is holding steady, and her dosage of Dopamine has been reduced from 16mg to 12mg.

The only "set-back" she had today was her inability to pass urine. Her bladder was full, but she was having trouble expelling the urine, so they ended up placing a catheter. The nurse wasn't concerned and noted that a lot of CDH babies need a catheter at some point.

So, all in all it was a great day. Hopefully we stay on track tomorrow.

And now it's time for pictures!

Viv's sensors make her look a bit like ET. "Viv phone home!"
All of Viv's equipment.

Daddy providing oral care. Check out all of her hair!

First family photo! 


2 comments:

  1. I love the family photo! Absolutely beautiful!

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  2. Wow, that photo of her with all her equipment is crazy. It made me think about how incredible it is that when things are working correctly, our body is doing the work of all those machines by itself.

    Love the family photo! You guys look great!

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